General Summary
Albinism Advocacy Africa is a Nairobi-based humanitarian initiative (currently not yet registered, but intending to register once funding is secured). The project addresses stigma and discrimination associated with albinism in Kenya (and wider Africa over time), alongside practical support needs such as sun protection, eye care, education support, and awareness creation.
Current operating systems are lightweight: WhatsApp, phone, notebooks, and Google Drive, with consent in place to store/use beneficiary data for support services.
The project is currently in formation stage with no active partners yet, but intends to build relationships with donors, the Government of Kenya, corporates, clinics, schools, and relevant NGOs.
Key constraints right now are funds, equipment, and transport. Immediate priorities are education support, sun lotions & sunglasses, and awareness creation.
Project Leader: Lilian Maluki
Email: lmaluki83@gmail.com
Phone:+254724528244
Current Situation
Operates with a small mobile phone and internet access; no laptop/printer in-house.
No formal workplace/office yet; desire for a place where people can come for help.
Electricity and internet are generally stable in Nairobi (mobile networks available).
Data is currently stored on the phone and backup is not reliable; no secure record storage.
Transport is mainly walking or commuter buses; biggest travel barrier is funds.
Printing/scanning is via a pay-per-use cyber café.
Future Vision
A rented office base within 6 months that beneficiaries can access.
A functional workspace: desk/chair, lockable cabinets, stationery, internet router.
Basic office kit: computer/laptop, printer, small photocopy/scanning capability.
Secure data handling: reliable backup + safe storage for sensitive information.
Predictable ability to travel for delivery/meetings (transport costs planned and funded).
How Do We Get There?
Use Starter Pack sponsorship to provide a basic “non-mobile-only” admin setup (laptop + printer + secure storage plan).
Establish a simple data storage + backup routine (cloud folder structure + scheduled backups).
Implement basic information security: lockable storage, controlled access, and clear handling rules.
Secure a small rented office (or shared space initially) with essential furniture and connectivity.
Put in place a simple transport allowance / travel plan tied to delivery activities.
Document “who is responsible for equipment” (named custodian + basic usage rules).
Current Situation
Service delivery has been extremely limited so far (e.g., one-off sun lotion distribution from a well-wisher).
Core needs are clearly identified: sun lotions, sunglasses, protective clothing/hats, plus education support.
Case reality is understood: families/children often start fearful and struggling with acceptance; support boosts confidence.
Some elements can be remote (e.g., counselling, some education support), but many require physical delivery.
Future Vision
A reliable monthly “minimum service package” including:
- Education support
- Sun lotion distribution
- Eye-care support
Regular awareness creation activities (community/school sessions), reducing stigma and misinformation.
A clear case pathway from first contact → support → follow-up → documented outcome.
Safeguards in place to reduce service risks: stigma, exploitation, misinformation.
Tangible outcomes tracked (e.g., improved protection routines, improved confidence, “stable eyesight” support).
How Do We Get There?
Define the monthly minimum service package (what is delivered, to how many, how often).
Build a simple case intake + register process (phone/WhatsApp intake + secure register + consent check).
Secure supply/partners for sun lotions and eyewear (donations + bulk purchase route).
Create a monthly distribution + follow-up rhythm (schedule, locations, proof capture).
Develop an awareness pack (simple messages + FAQs + school/community session template).
Start small (e.g., the first 20–50 people), document proof, then scale using the evidence.
Current Situation
Small active team: about 3 active weekly.
Named roles currently:
- Project Coordinator: Lilian Maluki
- Brand Ambassador: Elsie Laine Mutheu
- Project Trainees (unpaid/undeveloped roles at present)
Skills present: healthcare links, social work, advocacy.
Skills gaps: administration, fundraising, counselling.
Workload risk identified: burnout.
Communication is mainly WhatsApp + daily phone interaction; safeguarding lead not yet assigned.
Future Vision
A clearer operating structure with defined roles, responsibilities, and workload distribution.
First paid positions (as funding allows): Coordinator, Admin, Trainees.
A named Safeguarding Lead with basic safeguarding rules in place.
Volunteers recruited and managed through agreements and supervision (plus light screening).
Team trained in: data handling, case management, project management, safeguarding, fundraising, reporting.
How Do We Get There?
Confirm a minimal org structure: Coordinator + Admin + Trainees + Safeguarding Lead.
Create simple role descriptions and a weekly rhythm (quick weekly check-in + daily WhatsApp ops).
Put safeguarding basics in place (lead assigned + rules + escalation pathway).
Provide targeted training (data handling, reporting, basic safeguarding, fundraising).
Introduce PHC-style tracking (who did what, when, for whom) so workload and progress are visible.
Bring in volunteers gradually using agreements + supervision (avoid overload and confusion).
Current Situation
Currently no income (still in formation stage).
Known monthly costs (rough): rent, airtime, transport, printing, internet (values provided in Ksh).
Emergencies can occur: medical cases, and possible relocation if there are security threats.
Records are basic but exist: mobile money + bank transfer statements.
Intends to open a project bank/mobile account in the project name.
Smallest meaningful funding: $500 can materially help (e.g., urgent seasonal needs).
Future Vision
A dedicated project account and clean separation of funds.
A simple monthly budget linked to activity plans (delivery + overhead + contingency).
Regular financial proof for donors: reports + receipts + photos + beneficiary confirmation + short videos.
Predictable funding flow (monthly sponsorship or staged milestones), enabling consistent service delivery.
A credible “donor-safe” system that makes larger grants/sponsors more likely.
How Do We Get There?
Start with sponsorship of the 6-month Starter Pack to fund the “governance + proof” foundation.
Open/activate the project bank/mobile money account in the project name.
Implement lightweight financial controls: receipt capture, simple ledger, approvals, ring-fencing.
Convert spending categories into a basic monthly budget (delivery items + transport + comms + printing).
Publish monthly proof pack (receipts summary + photos + short stories + numbers reached).
Use that evidence to approach larger donors and shift from ad-hoc gifts to predictable funding.
Current Situation
Audiences are clear: donors (local/international), Government of Kenya, beneficiaries/families, schools, clinics.
Current channels: WhatsApp, Facebook, church announcements, community meetings.
Assets available: short video + photos.
Messaging exists:
- Donors: “Come to our aid and let’s hold hands for this noble cause.”
- Beneficiaries: “I am sure one day we shall all look back and smile.”
Contact list is limited (mainly parents/beneficiaries).
Partnerships that could unlock growth are identified: local government, NGOs, hospitals, dermatologist, ophthalmologist, schools.
Future Vision
A consistent donor outreach system with a repeatable pack (one-page + two-page + proposal link).
A growing contact base beyond beneficiaries: NGOs, CSR teams, clinics, schools, community leaders.
Quarterly rhythm of events: awareness day, clinic day, school/community sessions.
Monthly public proof that is easy to produce: photos of delivery, short stories, receipts summary.
Stronger credibility through partner endorsements and documented impact.
How Do We Get There?
Create a simple marketing kit (brief + proposal link + proof examples + FAQ).
Build a contact database for funders and partners (donors, NGOs, clinics, schools, corporates, gov).
Run outreach via the easiest channels first (WhatsApp/Facebook/community), while expanding to formal funders.
Establish a quarterly events calendar (awareness + clinic + school/community sessions).
Capture proof every month (photos + story + receipts summary) and publish consistently.
Pursue the “unlock” partnerships (hospital/dermatology/ophthalmology/schools/government/NGOs).