BIQ01 - What is the official name of your organisation/project (and any registration number if you have one, plus main contact, email address and phone number)?
ALBINISM ADVOCACY AFRICA
Email: lmaluki83@gmail.com
Phone:+254724528244
BIQ02 - Are you registered (NGO / CBO / company / informal group)? If not, do you want to register?
Not yet registered,We hope to register in the near future upon getting funds.
BIQ03 - What location(s) do you operate in (town/county/region)? Any plans to expand?
We are currently in Nairobi,Kenya.
Planning to expand nationally and globally.
BIQ04 - What problem are you solving in one sentence?
We are basically solving the stigma that is associated with being 'Albino' in Kenya and Africa at large.
BIQ05 - What does "success" look like for you in 6 months and 12 months?
Success in next few months to us as an organization,will be,to look back and see every intention of this advocacy program taking shape and falling into place,with example,kids benefiting with education support, sunlotions,sunglass, protective clothing et cetra.
BIQ06 - What is your biggest constraint right now (money / people / equipment / skills / trust / transport / time / other)?
-Funds
-Equipment
-Transport
BIQ07 - What are the top 3 priorities you want help with immediately?
-Education support
-Sunlotions and sunglasses
-Awareness Creation
BIQ08 - What partners do you already work with (government, clinics, schools, NGOs, churches, local leaders)?
No one yet.
Hopefully we can get donors and incorporate the Government of Kenya and corporates.
BIQ09 - What systems do you currently use (paper notebook, WhatsApp, Excel, Google Drive, website, none)?
WhatsApp,Phone,Notebooks,Google Drive.
BIQ10 - Do you have permission/consent from people on your register to store/use their data for support services?
Yes we do
PSQ01 - What service can you name, with brief description of each that will help the beneficiaries of your project?
Most people with Albinism require skin care and eye care services.For that
reason therefore, sunlotions and sunglasses are essential.Protective clothes which include wide brimmed hats and long sleeved shirts with a full neck.
Of importance too would be education support.This helps in bringing up empowered individuals who can stand up for themselves thus eliminating stigma and possible discrimination.
PSQ02 - List your current services (what you do today), and for each: how often and for how many people per month?
Just once we were able to distribute sunlotions from a well wisher.
PSQ03 - Which services are most needed but you cannot currently deliver?
-Education support
-Sunlotions
-Sunglasses
-Protective clothing & Hats
-Safety shelters for those affected.
PSQ04 - What are the top 5 needs reported by beneficiaries of your project (health, safety, work, school, counselling, etc.)?
-Health
-Sunlotions and sunglasses
-Schooling
-Safety
-Counselling
PSQ05 - What is the service pathway right now? (How does a person join → receive help → follow-up?)
Being the project coordinator,the only help pathway is my phone number and email address
Email: lmaluki83@gmail.com
Phone:+254724528244
PSQ06 - What makes your approach different from other organisations (if any)?
Keen Interest on especially how awareness creation is done.I feel alot needs to be done.So much has not been achieved because the people involved take it so casually.
PSQ07 - What "minimum service package" could you reliably deliver every month if basic funding existed?
-Education support
-Sunlotions distribution
-Eye-care support
PSQ08 - What does a typical case look like from first contact to resolution?
Scared parent plus a child struggling to accept who they are to finally getting help with lotions and a support that puts smiles on their faces while boosting their self esteem.
PSQ09 - What are the risks/harm points in service delivery (stigma, security threats, exploitation, misinformation)?
-Stigma
-Exploitation
-Misinformation
PSQ10 - How do you measure whether a service worked? (simple indicators)
-Happy faces
-Glowing skin
-Stable eyesight
-Fulfilled hearts.
PSQ11 - What services could be delivered remotely (WhatsApp/phone) vs require physical presence?
Remote:
-Counselling
-Education support
Physical Presence:
-Awareness Creation
-Sunlotions distribution
-Eye-care services
PEQ01 - What equipment do you have? mobile phone? pc? printer? monitor? - list all you have.
I only have a small mobile phone and access to the internet.
PEQ02 - How do we contact you? Telephone number? Office Address? Main Contact? Number of people in the management team? Number of people that the project will address?
You can always contact me on my phone number or email address.
Phone:+254724528244
Email: lmaluki83@gmail.com
Facebook Messenger: Lilian Mwende.
We do not have a management team yet,we are still in formation stage.
The project is meant to address about 20-50 Persons Living with Albinism in Kenya for now.
PEQ03 - Where are you working from? Would the office address be your home? a community centre? an internet cafe?
No formal workplace yet,with enough support and funds,some place could be set up in the near future.A
place where everyone who needs help can come and get help.
PEQ04 - What equipment is working reliably, and what is broken / missing / shared / borrowed?
Only equipment is a small mobile phone with not so much room for this whole project.
PEQ05 - How stable is your electricity and internet (daily / weekly outages)?
Nairobi has quite stable electricity plus internet from mobile phone companies
like Safaricom and Airtel
PEQ06 - Where is your data stored (paper files, phone, laptop)? Is there a backup?
Data is currently store in my phone I am afraid backup is not reliable,hence the need for better equipment.
PEQ07 - Do you have a safe place to store sensitive records?
Not really.
PEQ08 - Do you have transport (walking, bicycle, motorbike, car, public)? Biggest travel barrier?
Mostly I use walking or commuter buses.No personal car.No bicycle, nothing at all.
Biggest travel barrier would be funds.
PEQ09 - What are your printing/scanning options (none / pay-per-use shop / own printer)?
My printing and scanning options are a Cyber Cafe near where I stay.
PEQ10 - If you had a small "starter kit" (phone + laptop + printer), who would be responsible for it?
I would have to be responsible for it as the sole project owner
PEQ11 - What does your workspace need to become functional (desk, chair, lockable cabinet, internet router, etc.)?
-Office space
-Desk
-Chair
-Lockable cabinets
-Internet router
-Stationary
-Computers
-Laptop
-Printer
-Small photocopy machine.
PEQ12 - What would be the ideal operating base in 6 months (home office / shared centre / rented office)?
Rented office
PEQ13 - What security risks exist at your premises (theft, harassment, privacy exposure)?
None that I know of yet.
PQ01 - Who are the key roles today (leader, admin, outreach, finance, volunteer coordinator)? Names + roles.
-Project coordinator:
Lilian Maluki
-Project brand ambassador
Elsie Laine Mutheu
-Project Trainees
PQ02 - How many are active weekly (not just "on the list")?
About 3
PQ03 - What skills do you have in the team (counselling, healthcare links, social work, advocacy, fundraising, admin, IT)?
-Healthcare links
-Social work
-Advocacy
PQ04 - What skills are missing that you need most urgently?
-Administration skills
-Fundraising
-Counselling
PQ05 - What training would help most (basic safeguarding, data handling, case management, fundraising, reporting)?
-Data handling
-Case management
-Project Management
-Basic safeguarding
-Fundraising
-Reporting
PQ06 - How do you recruit and manage volunteers (screening, agreements, supervision)?
Through Agreements and Supervision.
PQ07 - Do you have a safeguarding lead / safeguarding rules? If not, who could be assigned?
Not yet,A Project Trainee could be assigned.
PQ08 - What is your communication rhythm (weekly meeting, WhatsApp group, ad-hoc)?
-WhatsApp group
-Daily Interaction through
Phone.
PQ09 - What conflicts or workload risks exist (burnout, role confusion, disagreements)?
-Burnout
PQ10 - If funding arrived, which 3 positions would you pay first (and why)?
-Project Coordinator
-Project Trainees
-Project Admin
FQ01 - Do you have any current income (donations, grants, sales, membership, events)? Rough monthly average.
We are still in the formulation stage, therefore there is no current income in terms of any donations,grants,membership or any other.
FQ02 - What are your fixed monthly costs (rent, airtime, transport, printing, internet)?
Rent - Ksh 25,000
Airtime - Ksh. 3000
Transport -Ksh. 3500
Printing - Ksh 5000
Internet- Ksh. 5000
FQ03 - What costs are unpredictable emergencies (medical cases, relocation, safety incidents)?
-Medical cases present anytime and anywhere.
-Relocation Incase of security threats.
FQ04 - What are the top 10 things you spend money on when you have it?
Basic need
-Food
-Housing
-Clothing
-Education of children
-Internet
-Airtime
-Parent support
-Transport
-Printing expenses
-Medical expenses
-Helping those in need.
FQ05 - Do you keep records (cashbook, receipts, mobile money statements)? Who holds them?
Yes I do keep records, currently just mobile money and bank transfer statements.
FQ06 - Do you have, or intend to open, a bank/mobile money account in the organisation name? If not, what do you use?
I intend to open a bank account/ mobile money account in the project name
FQ07 - What is the smallest funding amount that would make a real difference this month?
$500
To be used in the Christmas expenses of children with albinism in Kenya
FQ08 - What is your 12-month "ideal budget" (even if rough)?
Between Ksh.0 to Ksh 5,000,000
FQ09 - What funding have you tried before (who, when, result)?
None.
FQ10 - What would you consider "good governance proof" to show donors money is safe (reports, receipts, photos, beneficiary confirmations)?
-Reports
-Receipts
-Photos
-Beneficiary confirmation
-Videos
MQ01 - Who is your audience: donors, local community, government, clinics, schools, families, beneficiaries?
-Donors(Both Local and International)
-Government of Kenya
-Beneficiaries
-Families of Beneficiaries
-Schools
-Clinics
MQ02 - What channels do you currently use (WhatsApp, Facebook, TikTok, radio, church announcements, community meetings)?
-WhatsApp
-Facebook
-Church Announcements
-Community Meetings
MQ03 - Do you have any assets: logo, photos, short video, testimonials, case stories?
Just a short video and photos.
MQ04 - What is your "one sentence" message to donors?
Come to our aid and let's hold hands for this noble cause.
MQ05 - What is your "one sentence" message to beneficiaries?
I am sure one day we shall all look back and smile.
MQ06 - What questions do people ask most often about your project (and what answers do you give)?
What is Albinism?
-Albinism is a genetic condition characterized by lack of Melanin on the skin,hair and eyes.
Is it contagious?
-No it's not Contagious.
What do you do Incase of sun exposure?
-We use sun protective devices like Sun lotion, sunglasses and wide brimmed hats or umbrellas if need be.
Do People with Albinism go to school?
- Yes they do,they are human and are entitled to every right enshrined in the Human rights Act.
Who gives birth to children with albinism?
- Parents of children with albinism are mostly carriers of the recessive gene that causes albinism,They don't have to be light skinned to sire children with albinism.Mostly in four chances,only one child can be born with Albinism.Though we still have exceptions.
MQ07 - Do you have a list of contacts (supporters / organisations)? How many?
I only have a list of parents like me who are the supposed beneficiaries of this project
MQ08 - What partnerships would unlock growth fastest (hospital, police, school, local government, NGO)?
-Local Government
-NGOs
-Hospital
-Dermatologist
-Ophthamologist
-School
-
MQ09 - What events could you run quarterly (awareness day, clinic day, school session, community meeting)?
-Awareness day
-Clinic day
-Community Meetings/School sessions
MQ10 - What proof would be easiest for you to publish monthly (numbers helped, photos of deliveries, short story, receipts summary)?
-Photos of Delivery
-Short stories
-Receipts Summary